For more than two decades, Rosalie managed ulcerative colitis, a type of inflammatory bowel disease (IBD), with oral medications and, on occasion, suppositories or enemas to quiet minor flare-ups. That regimen kept symptoms in check until, at age 57, she landed in the hospital鈥攁 sign of her worsening condition.
After being treated and released, Rosalie stayed on the same medicines she had been taking all along. But a few years later, she experienced another major flare-up, the worst she had ever had up until that point. 鈥淲hen I say major, I couldn鈥檛 leave the house,鈥 she explains. The litany of symptoms, including bleeding, cramping, and diarrhea, made her miserable.
Following a colonoscopy, which revealed the severity of the situation, Rosalie鈥檚 gastroenterologist referred her to the experts at 嘿嘿视频鈥檚 Inflammatory Bowel Disease Center. It marked a turning point in the trajectory of her health.
Help for Ulcerative Colitis
From that first visit with David P. Hudesman, MD, a gastroenterologist and the center鈥檚 co-director, Rosalie felt at ease. Their meeting, which included detailed questions about her medical history, 鈥渏ust made me feel so understood, and his attitude was so encouraging.鈥
Rosalie had been reluctant to go on a biologic, a class of therapeutics made from live organisms. Biologics block proteins that cause inflammation in the gut. A few biologics are considered first-line therapy for treating moderate to severe ulcerative colitis. But some are linked to a small risk of certain cancers. As a breast cancer survivor, Rosalie appreciated that Dr. Hudesman listened to her concerns, walked her through the benefits and risks, and clearly explained how the biologic he intended to prescribe would work.
鈥淭he bottom line is鈥verybody listens, and that is critical.鈥濃擱osalie, Age 75
The first therapy he prescribed did the trick, for a while, at least, and when it no longer kept symptoms from flaring, he switched her to a different one. Without biologic therapy, Rosalie is certain she would have been a candidate for surgery.
Today, the 75-year-old retiree is a regular at the Inflammatory Bowel Disease Center, where she goes for injections every 8 weeks. It鈥檚 where she sees Dr. Hudesman, his 鈥渒ind, compassionate鈥 physician assistant Juliette A. Bender-Heine, PA, and a team of nurses who, in her words, are 鈥渇riendly and efficient.鈥
One-Stop Comprehensive Care for IBD
Few places in the country bring together the breadth of services and world-class expertise that the Inflammatory Bowel Disease Center offers under one roof. Patients benefit from access to a multidisciplinary team providing an array of treatments, including gastroenterology services, infusion and injection therapies, surgical consultations, ostomy care, nutritional support, and psychosocial care.
Every other week, Rosalie attends a support group led by clinical psychologist Jessica A. Gerson, PhD, for people with IBD. The group itself provides a community for sharing and learning from others about their IBD experiences. Rosalie also sees Dr. Gerson every month for individual therapy. Through those sessions, she has learned relaxation techniques and other strategies that help with reducing stress鈥攚hich can worsen ulcerative colitis symptoms鈥攁nd with managing symptoms when they do arise.
People with IBD often experience anxiety or depression, or both, because these illnesses can impact quality of life, Dr. Gerson explains. 鈥淟earning new coping techniques can be a great help,鈥 she says. In addition, research into the gut鈥揵rain connection suggests that reducing stress can aid in physical healing and help stave off flares. Through the Inflammatory Bowel Disease Center, people can participate in short-term individual therapy, support groups, gut-directed hypnotherapy groups, and cognitive-behavioral therapy groups, as well as a buddy鈥攑eer-to-peer鈥攑rogram.
Navigating dietary restrictions poses another challenge for people with IBD. Every month, Rosalie sees Arielle Leben, MS, RD, CDN, a registered dietitian with the Inflammatory Bowel Disease Center, who 鈥渉as given me the tools that I need to manage flares on my own.鈥
Leben works one-on-one with people to develop personalized nutrition plans. This equips them to manage their diets depending on the circumstances鈥攆or example, whether they are having a flare, preparing for or recovering from surgery, or in remission.
鈥淥ne of the goals of the nutrition program is to foster a healthy relationship with food,鈥 adds Leben. When counseling patients, she places as much emphasis on what people should be eating to manage symptoms and optimize overall health as she does on what to avoid or limit.
From Rosalie鈥檚 point of view, dealing with ulcerative colitis can be isolating, painful, and debilitating, but having a support system to help manage the physical and mental effects has made all the difference. 鈥淚鈥檓 the poster child for the Inflammatory Bowel Disease Center; it is an absolutely remarkable place for people with this illness,鈥 she says.