Ozzie Wade was born with half a heart. He was also born a fighter. Read about his heroic resilience and the remarkable surgical interventions that saved his life.
Pregnant? Hannah Davis Wade felt the telltale signs of hunger and nausea simultaneously, yet how could that be? She and her husband, Tom, had stopped in vitro fertilization treatments months earlier, discouraged after a series of miscarriages and a full-term stillbirth.
So the surprise pregnancy brought as much fear as joy. At 16 weeks, a routine ultrasound showed a serious problem: a complex congenital heart defect known as hypoplastic left heart syndrome (HLHS). Dubbed 鈥渉alf a heart,鈥 the condition leaves the left side of the heart so underdeveloped that it can鈥檛 effectively pump blood to the rest of the body.
Heart malformations are the most common congenital defects, affecting nearly 1 percent of births in the United States, but HLHS is rare, found in only 1 out of 4,344 newborns. Once untreatable, HLHS is now managed with three reconstructive surgeries鈥攗sually performed at birth, 3 to 6 months of age, and 2 to 3 years鈥攖hat reroute blood flow to provide adequate circulation.
鈥淲e鈥檇 lost one baby and couldn鈥檛 bear to lose another,鈥 Hannah explains. But when she and her husband met with Achiau Ludomirsky, MD, pediatric cardiologist聽at Hassenfeld Children鈥檚 Hospital at 嘿嘿视频, they found the strength to go forward.
鈥淵ou can do this,鈥 he told the couple. 鈥淧eople with this condition survive and thrive.鈥
The couple also found comfort in knowing that their baby couldn鈥檛 be in better hands. Their surgeon, Ralph Mosca, MD, chief of the , is one of the world鈥檚 top specialists. Renowned for his skill and speed鈥攁 vital asset because the infant is connected to a heart-lung bypass machine in the operating room鈥攈e has performed more than 6,000 open heart surgeries, including many complex cases.
Ozzie Wade was born on August 22, 2017, at a mere 4 pounds, 8 ounces. His parents held him for a blissful fleeting moment before a second, unexpected birth defect became apparent. Connected to a ventilator prior to planned heart surgery, Ozzie鈥檚 left lung blew up like a balloon. Unable to expel air, he fought for his life. Pediatric surgeon Jason C. Fisher, MD, prepared for an emergency lobectomy, removing about one-third of Ozzie鈥檚 lungs, which in time would grow to fill the empty space.
To make an appointment, visit the Pediatric Congenital Heart Program.
Ozzie still needed life-saving surgery on his heart as soon as possible, but the combination of compromised heart and lungs made the situation dire. The challenge of keeping him alive fell to Sujata Chakravarti, MD, director of the Congenital Cardiovascular Care Unit. With medications, a ventilator, and the power of human touch, she and her team helped Ozzie get strong enough for the first cardiac repair.
鈥淥zzie鈥檚 recovery from the lung surgery proved he was a fighter,鈥 says Dr. Mosca, who created a 鈥渘ew鈥 aorta and connected it to the right ventricle. 鈥淚t鈥檚 one of the riskier things I do,鈥 he acknowledges. 鈥淭he baby鈥檚 heart is the size of a walnut, and the aorta鈥1.5 millimeters wide鈥攊s like a strand of spaghetti. There鈥檚 no room for error. No second chance to get it right.鈥
On September 21, 2017, Ozzie emerged from the six-hour procedure with a heart that pumped blood to his body through the right ventricle. While fully and partially oxygenated blood still comingled鈥攖o be remedied with a later surgery鈥攖he redesign gave Ozzie an immediate boost. Within two weeks, he shed all the machines and monitors, drank from a bottle, and prepared to go home.
鈥淭here鈥檚 only one word for that,鈥 says Dr. Ludomirsky. 鈥淢iracle.鈥